I am so grateful to have found the geneticist in Boston for Peyton. We have been in touch with him several times since we returned home. I wrote a post yesterday {you can read that here} about a potential development in the 6-year-long struggle to unravel the medical mystery that is Peyton. It may be nothing - there is no guarantee - but this doctor is working a lead which only came about because he did research on Peyton's list of conditions and came up with this possibility. After things being relatively stagnant on the genetics from since we moved to Charleston from Houston {where she had previously been with Texas Children's Hospital - another amazing faciltiy}, we are so grateful that someone is finally doing some serious work on her case. This has not been our experience with MUSC.
Funny story...the geneticist here in Charleston had in Peyton's record that she was adopted and there was no family history. Um. No.








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