The younger of the two is five and a half and has multiple special needs.
And she is medically fragile on top of that.
Her whole life, we have lived with no diagnosis.
Several individual problems, but no diagnosis exists for all of the conditions she has.
She has profound hearing loss, had cataracts removed at 2 weeks old, is legally blind, has multiple brain malformations and is missing a portion of the back of her brain, hip dysplasia, severe central sleep apnea, chronic respiratory illness, a heart murmur, extremely low muscle tone, shoulders and knees that dislocate all the time, a g-j tube, reflux, and the list goes on.
She's endured 19 surgeries.
Our life that we live is our version of "normal",
but I can assure you it's no "normal" most people have ever seen.
A few years back, someone shared with me a story called
"Welcome to Holland"
which really captures what it's like to be on a special needs journey.